At this year’s Committee of Supply debate, Nominated Member of Parliament Ong Hua Han asked the Ministry of Health to consider extending financial help for patients with spinal muscular atrophy to access disease-modifying treatments. Such treatments improve patients’ quality of life, but are not full-fledged cures.
He cited a crowdfunding campaign by Singaporean games journalist Sherry Toh, who is trying to raise S$375,000 for a one-year supply of the drug Evrysdi (risdiplam), an oral medication to be taken daily. Evrysdi is the only treatment option registered with and approved by our Health Sciences Authority.
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